A few weeks ago I was given a steroid burst treatment. It lasted about 2 weeks to whittle down through the steroids. I felt so much better on the steroids, my pain throughout my body, throughout my tissues and joints, was almost gone. Bye bye. But mere days after finishing the burst of steroids, I started to feel pain flares again. They were minor and short. One would hardly notice them really. But every one of them left me feeling more and more anxiety. Today, the pain is truly returning. I can now say with certainty it is my disease's pain. It is nothing else or more or less. It is what I carry within me that is doing this. I almost thought for a second it might be gone, maybe it had all been some crazy bad dream. But I was wrong. It has returned, scared away for a minute, back for vengeance. You might ask what the pain feels like, and I am not even sure I can explain that…my goodness, I have no idea how to explain it. My neck hurts pretty good right now. I am trying not to move it in order to ward off the pain. My wrist hurts and aches and flares. Along with that my fingers hurt. This morning I woke up in pain as I had so many times before the steroids. Stumbling across the floor to my son's room. Gripping the steering wheel as I drove through town I felt the pain coursing in my fingers…not at the knuckles or joints, but in between, in the meat of the finger. My wrist ached with my internal groan on so many instances of grabbing something or turning my hand or whatever. My neck just is pain. Oh I wish it would go away. I wish I could stay on the steroids forever. (Oh, but I don't, because steroids have their own terrible side…) I just really can't believe this happening. I still, so many weeks later, am shocked by the situation I find myself in…So unexpected! But, then, I guess, who expects some crap like this…I feel quite a bit like crying. I still might.

Needless to say, my OCD has been on high alert. Grasping onto everything. Reminding me that this disease has a life expectancy. That this disease can be painful as hell. But, my OCD also makes me feel guilty…oh isn't that OCD's way…It reminds me of how many people have it worse and why do I have to be a whiny little snot about it. It yells into the far reaches of my mind, get the hell over yourself!!! I feel guilt for all those who have it so much worse or have had it so much worse…I can't imagine all they have gone through. I feel awful for what so many have been through.

But then I say, what the hell is wrong with me feeling awful about my own situation for a minute? What the hell is wrong with me feeling scared about this at all? Because that is what I am…scared…It can't be real, it must go away right?…But, no, it doesn't. There is no cure. And I am scared…

1 Comment
  1. RandomGirl 10 years ago

     How about instead of feeling guilty about the brief moments you feel sorry for yourself, you congratulate and treat yourself for carrying on. You obviously have a lot of courage, determination, and coping skills. GOOD FOR YOU!!!

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