Well I guess I dont know how to start this or anything like that at all actually, but I am basically looking for a place to write how I feel and hopefully get some help.

I have been diagnosed with scoliosis and PCO. I am likely to be diagnosed with EDS soon also. All of this is complicating my life as I am 19 with the body and health of a 90 year old.

To be honest these are the least of my problems though. I will start at the beginning.

My mother and father split when I was 2, my father threw me and my pregnant mother out. She was the main thing in my life whilst I was growing up I never wanted to leave her side, I remember my dad used to visit me once every now and then on easter and bring the cheapest egg around, but I was too young to understand who he was. My mother married my stepdad when I was 6, her first marriage (yes i am a bastard) and her first real love. I was so happy butat the age of 9 my real father appeared again after 4 years of silence.

This time I was 9 playing in my front garden and he jumped out a dustbin truck calling my name, saying Im your father. I was scared but when he visited a week later asking to see me once a month I took the chance to try and get to know him. It lasted two months after that lies piled out every month. I started to become curious and exlplore I travelled to his house and witnesses lie after lie. so i left it.

I lived with my little brother, mum and stepdad. my brother ED* had ADHDand his behaviour got worse soon he had to move with my nan, this was awful a big loss for me as we were like 2 peas in a pod. Soon I started secondary schooland made friends but because I am alternative I got bullied a bit.

In 2004 my mum had a baby boy, beautiful and wonderful little man but we soon found out he has autism. This is one of my main issues , he is so fragile and i am so scared about his future, 2008 my little sister was born, hip dislocated, scoliosis of the spine BADLY! this is problem number 2 If it gets worse it could pierce her internal organs.

My mother as I said everything to me , she has part of her back wasting away and I feel i wasnt easy on her all these years so its partly my fault.

So to sum it up :

1. Im scared about what will happen to my mum

2. Im scared for my little sister

3. Im scared for my little brother

4. ED* is on a downward spiral (drugs,crime)

5. My grampa has cancer (terminal )

6. My older sister may have autism



  1. ShallNeverBeKnown 9 years ago

    Thank you , I will take what you said on board and see how it goes.


    Thank you again.



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  2. HoneyBunny 9 years ago

    You’ll be in my thoughts and prayers, sending supportive hugs your way.




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  3. TessErin 9 years ago

    I'm going to give you advice on something I've been through and that is having a grandparent with a terminal illness. Spend as much time with him as you can. Ask him about your parents' childhood and ask him about his growing up. My grandma met Helen Keller, a famous deaf and blind woman in the states. And I regret not asking her more about the encounter. I had to hear from her daughter about the meeting.
    As for your siblings, continue to love and support them in what they do. I'm going to a vocational school now and all of the students there, including me, are special needs in some way. It is possible for your siblings to learn and gain life skills to live a normal life. This school has showed me that.
    Take care,
    Tess xo

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  4. ShallNeverBeKnown 9 years ago

    Thank you all ,but Tess thank you so much reading your comment brought me to tears, i am sorry for your situations, but I really appreciate your help i feel you are definatly pushing me in the right direction thank you again tess


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